We had the first of several evaluations for the CI candidacy on Wednesday. The occupational therapist evaluated Lily and told us that she is above average in both gross motor and fine motor skills. She is quite a bit above average with her balance. This is a bit surprising to me because I thought hearing loss would cause some balance issues. So far it hasn't.
The rest of the evaluations have also been scheduled. We see the neuropsychologist and social worker this Wednesday, the CI audiologists this Friday, and radiology for her CT scan next Friday. I'm a little nervous about the CT scan because they have to give her IV sedation. We tried to get the scan back in January, but she wouldn't stay asleep with the rectal sedative. The day of the scan she won't be able to eat for several hours, which is sure to make her nice and grumpy. I know it will all be worth it in the end.
Once the evaluations are complete (May 29th), the CI team will decide if Lily is a candidate on June 4th. We will then schedule the surgery and submit it to insurance. Please pray as we move forward with Lily's journey to the hearing world.
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Your journey is moving right along! I will be praying the CT scan goes well, as does the CI team decision. In terms of her motor skills - the fact that she's sitting so well by herself is great. Lucas really didn't sit well by himself until 11 months, and he still isn't walking (and not really close to it, either) at almost 17 months. His balance has definitely been affected, but it sounds like Lily's has not. Yay!
ReplyDeletebtw... did you see that I tagged you on my blog? No pressure, no big deal, I just didn't know if you had seen it or not.
ReplyDeleteYour blog is very interesting as we are in the same place in our journey. At the end of May we have all of our evaluations and consultations and a CT scan on May 28th. I know what you are going through and it is not an easy road. You are in our thoughts and prayers.
ReplyDeleteGlad to hear that things are moving along. Hopefully your insurance company will approve the surgery quickly. It is strange to hear about all of the evaluations that have to be done. When Allison had her 1st one done, they did not require all of the testing. We did a CT Scan and a hearing test with her aids to see if she was getting any gain from them, they contacted the insurance company, got approval and scheduled the date for the surgery.
ReplyDeleteI know it seems like a long process, but just think of all the years of hearing and talking you have to look forward too.